• To preserve and protect the health of and to relieve persons affected by ichthyosis and any associated condition.
  • To enabled the basic knowledge of medical professionals and the general public on the subject of ichthyosis and its implications for the family.
  • To promote research into the management of ichthyosis and to publish the useful results thereof, and to support organizations promoting research into ichthyosis.


  • Compassion – We are a caring organization recognizing the unique challenges faced by our community and will provide support with kindness and empathy.
  • Hope – While celebrating today’s strengths and successes, we strive to convey to all individuals affected by ichthyosis that the future will be filled with friendship, support and a cure for ichthyosis.
  • Integrity – We will conduct ourselves in a trustworthy, ethical, and reliable manner in everything we do and say.
  • Responsiveness – We provide accurate and timely information about ichthyosis to meet the medical, social and educational needs of our community.

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